"Just Like Old Times..."
Yesterday was a good day, Jayne got up, sat in her chair after a trip to the bathroom and even had a little walk in the hall. She ate a few bites at each meal. We looked at old pictures, talked about everything and nothing. She had visitors and was able to follow conversations, but didn't talk much.
The next day, the 11th, Jayne had a challenging day. She needed us in the night but our system of communication failed. So when Kathy got up at 6am she was in discomfort and edgy. It took 50mg of the red liquid under her tongue and two hours of concerned effort on our part to get her comfortable. The hospise nurse arrived at 9am. She was in her chair uncomfortable, but resting. He rooted around with her trying to pin point the areas of pain. Her pains seemed to be everywhere. He tried a new salve on her bottom, got more red meds into her and he was off to his next patient. Will was on his own for a few hours. Then came the grand daughter and the great grand children. Kathy arrived to find Jayne in her chair with lunch still on her tray- not touched. Toys all over the floor. Children being children. Jayne just wanted to go to bed. She wanted the lights out and her hearing aids out too. Peace and quiet. Her afternoon was restful visiting with the kids that wondered in or the adults that came to check on her. By evening the moans coming from the baby monitor, our new communication devise, told us she is uncomfortable. A sip of water. A change of position. Red meds under the tongue. Resting now. Not a good day.
Th night was terrible trying again to regulate the pain. There was yelling and flalling arms and prayers for just die now. It took two hours to get things calm and the body to respond to the red med now added with a green gummy med. We don't ever want to see her go through that again!
Hospice nurse came the next day and her pains are such that we are now putting her on a clear med every 8 hours plus the red and green meds. Jayne is not alert, but she is not in pain either.
That is how she has been the last two going on three days. She smiles and mumbles from time to time, but there is no pain. The cancer has moved to bones, liver and colon; so they believe. We are turning her every hour, giving her sips of water and spending time in her room so she knows she is not alone.
We have visitors and Jayne mostly slept, but when we all went up to the room to say hello she smiled and made some incoherant comments as the little one told her about the tooth she had lost. She was a in and out of the momment, but was in not pain.
Kathy celebrated her birthday; Jayne had said she would stay for that and she is still with us. The neighbors came over and we had singing, cake and some guitar picking while she rested comfortably. She smiled a few times as she talked about pictures we were looking through. She is in no pain; well she is in a lot of pain, but has so many meds she just doesn't care.
We had a priest over to give her last rights; she smiled for him when he annointed her forehead. The aide comes everyday now; she bathes Jayne and gives us instructions on moving her to keep her comfortable. The nurse came too; he said it would be just a few days now.
The next day, the 11th, Jayne had a challenging day. She needed us in the night but our system of communication failed. So when Kathy got up at 6am she was in discomfort and edgy. It took 50mg of the red liquid under her tongue and two hours of concerned effort on our part to get her comfortable. The hospise nurse arrived at 9am. She was in her chair uncomfortable, but resting. He rooted around with her trying to pin point the areas of pain. Her pains seemed to be everywhere. He tried a new salve on her bottom, got more red meds into her and he was off to his next patient. Will was on his own for a few hours. Then came the grand daughter and the great grand children. Kathy arrived to find Jayne in her chair with lunch still on her tray- not touched. Toys all over the floor. Children being children. Jayne just wanted to go to bed. She wanted the lights out and her hearing aids out too. Peace and quiet. Her afternoon was restful visiting with the kids that wondered in or the adults that came to check on her. By evening the moans coming from the baby monitor, our new communication devise, told us she is uncomfortable. A sip of water. A change of position. Red meds under the tongue. Resting now. Not a good day.
Th night was terrible trying again to regulate the pain. There was yelling and flalling arms and prayers for just die now. It took two hours to get things calm and the body to respond to the red med now added with a green gummy med. We don't ever want to see her go through that again!
Hospice nurse came the next day and her pains are such that we are now putting her on a clear med every 8 hours plus the red and green meds. Jayne is not alert, but she is not in pain either.
That is how she has been the last two going on three days. She smiles and mumbles from time to time, but there is no pain. The cancer has moved to bones, liver and colon; so they believe. We are turning her every hour, giving her sips of water and spending time in her room so she knows she is not alone.
We have visitors and Jayne mostly slept, but when we all went up to the room to say hello she smiled and made some incoherant comments as the little one told her about the tooth she had lost. She was a in and out of the momment, but was in not pain.
Kathy celebrated her birthday; Jayne had said she would stay for that and she is still with us. The neighbors came over and we had singing, cake and some guitar picking while she rested comfortably. She smiled a few times as she talked about pictures we were looking through. She is in no pain; well she is in a lot of pain, but has so many meds she just doesn't care.We had a priest over to give her last rights; she smiled for him when he annointed her forehead. The aide comes everyday now; she bathes Jayne and gives us instructions on moving her to keep her comfortable. The nurse came too; he said it would be just a few days now.
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